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Anonymous asked:

Hi fellow cancer patient!, what's the secret to keep your hair? I hope you're feeling well

Oh how I wish I had an answer for you, but I do not. I have heard that cold caps can help. For me I think it is the fact that my hair is thick and I have so much of it. I had hair loss and my hair thinned but none of it started to fall out. I was prepared to lose my hair, I had long hair and cut it short when I started chemo and waited and waited for it to fall out and it just would not go. Good luck!

Percutaneous Nephrostomy (PCN) aka Priscilla and Chester

Sorry for falling off the grid for a while, as you last knew my kidneys were not being nice to me. Well because of that it meant a big change for me on Friday.

Friday morning I had my 3rd, yes, 3rd renal scan, which is a lot of laying down or sitting with your back being scanned by a fancy machine. If I have a good friendly tech they chat with you and time goes by quickly. Bless my tech, but she wasn’t much of a talker, and that is okay. So after that I went back to my room and rejoiced as my roommate packed up to leave!

Later in the afternoon a cluster of my doctors where outside my room. After a little bit of time they finally came in the room and told me what the plan for my care would be. From the tests they decide that it would be better for me to have a percutaneous nephrostomy also know as PCN or in non-medical terms tubes in my back that go from my kidneys to the outside in to drainage bags. Not being excited about it, but know that it is the best thing to do, I agreed to do it and signed the consent forms. From there it was more hungry waiting and thankfully I had the procedure that afternoon.

Like the other interventional radiology procedures I have had (power port and IP port) I was sedated and had a fun time chatting while a surgeon poked me in the back.

At first it was a huge burst to my confidence, but with time I have gotten to be more and more accepting of Chester and Priscilla (thanks Aunt Ann for the names). It will take time, and I don’t know how long these two lovely things will be with me, but I need my creatinin levels to go down, and this is the best way for it to happen.

I am now home from the hospital, I was discharged on Monday, had a small successful outpatient procedure to remove a small mass on my right side on Tuesday and have been adjusting to the new-ness of what is going on. Thankfully I am healing quite well, and I kinda think it is cool.

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